Learning that you have a disease, no matter what it is, is probably the hardest part to deal with. The shock and surprise of it can create all sorts of different feelings. When I was diagnosed with TSC, I just couldn't believe it was real. I read stories of different families' stories, reactions of shock and horror, denial, and depression.

The major problem with diagnosing TSC is that many doctors don't even know about the syndrome. Only those specialized in neurology or who just happen to know about the disease can really tell; any general staff can't recognize the seizures, and the dermal patches on newborns are easily mistaken for birthmarks.

The information on this section is to show the different ways for diagnosis. To see the different types of diagnosis, look at the subcategories under diagnosis on the nav bar.