Though there are no cures for TSC, unless you are severely affected, can generally live a normal lifestyle. You may need to adjust some things, such as taking an anti-epileptic medication, more check-ups, or maybe some surgery. You may not be able to drive (although I don't know about regulations in other states, in Washington, you have to be seizure-free for at least 6 months before you can drive.) As long as you can keep the symptoms under control there is nothing to stop you.

It is your option if you want people to know or if you want to keep it to yourself. Though I have no trouble being completely open with the subject, and have no problem with an occasional joke (one of my friends jokes about me being one of the X-Men,) the disease may be psychologically detrimental to some.

As for getting a job, it is illegal to discriminate employees for people who suffer from such diseases as long as they also qualify for the job. Remember this: just because you have the disease does not mean that you are a shoe-in for a job.

Later in life, the decision to have a child may pose a difficult question. There is always a chance that offspring might get the disease. What would happen? How difficult will it be if he/she is affected.

Here's to a life well lived!

Title - Tuberous Sclerosis Teen Community

Page Title - Living With Tuberous Sclerosis